Ben was 12 years old. His only obvious symptom was vomiting. Within 16 hours of arriving at the hospital, he was diagnosed with the potentially fatal auto-immune disease Wegener's Granulomatosis.
Despite being treated by the division heads of nephrology and rheumatology at Seattle Children's Hospital, the first few years of treatment it seemed like if anything could go wrong it would. We toured the hellish valleys of dialysis, surgeries, seizures, and month after month of chronic nausea/vomiting which stole Ben's childhood innocence and two years of school. The links on the left provide details of this experience.
While nothing can ever make up for that, we tried to balance all that medical drama with some adventures. Ben was able to go on a "Hunt of a Lifetime." Trips were made to Washington D.C., Mount Rushmore, and Yellowstone in addition to his local hunting and fishing adventures. Drover, Parson Russell terrier and best friend, came to live with us.
Like many who have taken similar journeys before us, we experienced incredible blessings and personal growth and recognize that every day is a great day to be alive.
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©2009 P. Brager
This web site is for information purposes only.
Information contained on or accessed through this web site is entirely at your own risk.
This web site is for information purposes only.
Information contained on or accessed through this web site is entirely at your own risk.